PRESS RELEASE NOVEMBER 6, 2013
FOR IMMEDIATE RELEASE
WORLD DIABETES DAY - NEGLECTS BRITTLE DIABETES
World Diabetes Day, which is celebrated on November 14th each year, is led by the International Diabetes Federation (IDF) with roots worldwide. The IDF looks to educate a global audience about Diabetes, and yet when you plug Brittle Diabetes into the IDF search data base, – it simply asks the question “did you mean little”. The IDF fails to recognize the existence of this rare form of type 1 diabetes called Brittle or Labile characterized by rapid unpredictable up and down shifting in blood glucose levels.
At the beginning of 2013, none of the major health organizations, NIH, WHO, IDF, JDRF gave credence to the existence of this rare condition. At the request of the Brittle Diabetes Foundation (BDF), the National Institute of Health (NIH) had its researchers examine the medical literature and came to the conclusion that Brittle Diabetes should be recognized as a rare disease and as a separate and distinct form of type 1 diabetes.On July 3, 2013 the NIH established and now maintains an informational brittle diabetes site aimed at educating the general public about this rare condition.
If the IDF looks to educate a global audience about diabetes, its causes, treatment and potential avenues for a cure, then why do they avoid 80 years of medical findings, basic diabetes research, and clinical trials that clearly show that Brittle Diabetes is unique and that the brittle aspects of this rare condition has a treatable cause. (BDF) now lists 18 known causes on their website .
The literature is replete with ample evidence to suggest -diagnose the cause, treat the cause and brittle diabetics revert to a stable type 1 condition.
BDF is not seeking a cure for diabetes. It does applaud the efforts of those who have spent over 60 years in this pursuit. What BDF supports is for physicians who rarely ever get to see a true brittle diabetic in their practice, not to be so quick as to label their patients as non-compliant. But, take the time to determine their patient’s level of glucose instability, and if brittleness is suspected, be willing to play detective in determining its likely cause. Treat accordingly and provide their patients with the relief they seek - take them from a disruptive daily life to a more stable type one.
Emanuel V. Sorge Ph.D.
Chairman & President