Through the efforts of BDF on July 3, 2013 the NIH, after months of researching the literature, agreed with BDF and for the very first time concluded:
BRITTLE DIABETES is a RARE DISEASE .
The National Institute of Health (NIH) Office of Rare Diseases Research (ORDR)
has set up a BD informational website.
According to NIH, BD affects between 4,200 to less than 9,000 people in the USA.
Have any questions BDF hasn’t answered – you now can ask the NIH!!!!! GO TO:
Following the NIH's decision, NORD & JDRF have joined our cause.
NOTE: Prior to July 2013 not a single health organization in the world recognized the existence of Brittle Type 1 Diabetes. This included the National Institute of Health (NIH), the National Organization of Rare Diseases (NORD), the Juvenile Diabetes Research Foundation (JDRF), the International Diabetes Federation (IDF), and the World Health Organization (WHO)
Despite 80 years of medical research and publications and millions of dollars spent on clinical trials to alleviate Brittle Diabetes none of these health organizations listed Brittle Diabetes as a disease entity. That has now changed.
Place the term "Brittle Diabetes" into the IDF search box and it asks "Did you mean Little". The American Diabetes Association still refuses to list or even mention Brittle Diabetes in its 2017 Standards of Medical Care for Diabetes. BDF is focusing its public relations efforts on these two organizations for 2017/2018.
revised 7/11/ 2017